News

April 17 is World Hemophilia Day

Date: 04/15/2022

 

April 17 marks World Hemophilia Day, an event to create awareness and action regarding hemophilia and other bleeding disorders. These serious disorders affect a person’s ability to clot blood, which can turn minor traumas that wouldn’t ordinarily be cause for concern into potentially life-threatening events. However, because hemophilia and other bleeding disorders are statistically more rare than other chronic diseases (only 1 in 10,000 suffer from hemophilia), these disorders often get overlooked when it comes to funding and exposure. That is why this year’s theme for World Hemophilia Day is “Access for All: Partnership. Policy, Progress. Engaging your government, integrating bleeding disorders into national policy.”

AcariaHealth is well-positioned to boost bleeding disorder awareness. We are one of the few specialty pharmacies in the United States that offers the infusion therapies required by these disorders, through our Hemophilia Center of Excellence.

Bleeding disorders may be rarer than other chronic diseases, but they are no less serious and impactful to patients and their loved ones. This April, we encourage you to learn more about hemophilia and how, together, we can serve as advocates for patients, families and caregivers who manage life with these conditions. Patients and advocates can also consider taking action to help boost awareness of hemophilia and bleeding disorders by:

  • Getting Social - Post about bleeding disorders on Facebook, Twitter, and LinkedIn using the #WorldHemophiliaDay, #WHD2022, and #LightItUpRed hashtag.
  • Sharing Your Story about how you or someone you know has been affected by bleeding disorders, and listening to the stories of others.

 

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